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Dear Dai
Petition P-04-532 Improving Specialised Neuromuscular Services in Wales
The Petitions Committee for the 4th Assembly considered the following petition, submitted by the Muscular Dystrophy Campaign at their final meeting on 8 March 2016:
We call on the National Assembly for Wales to urge the Welsh Government to ensure that Health Boards implement the investment proposed by the Welsh Neuromuscular Network Vision Document for improving specialised neuromuscular services in Wales.
Additional Information:
The Welsh Neuromuscular Network is recommending the following priority developments: 1. Increase in Family Care Advisors and support. 2. Specialist adult neuromuscular physiotherapists. 3. Appointment of consultant in adult neuromuscular disease. 4. Increase in clinical psychology. 5. An equipment budget to enable minor purchases and lease arrangements.
At that meeting, Members agreed to ask the incoming Health Committee if they would consider including this issue on its forward work programme for the 5th Assembly. As the incoming Chair, I am now taking forward this request as agreed by the previous Committee.
I would be grateful if you could send your response by e-mail to the Clerking Team at SeneddPetitions@assembly.wales.
Yours sincerely
Mike Hedges AC/AM
Cadeirydd/ Chair